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Almost dying taught Michelle Wulfestieg about living

Near-death experiences fuel the work of Southern California Hospice Foundation's director

Michelle Wulfestieg, in Newport Beach on Wednesday, Mar. 14, 2018, was 11-years-old when she had her first stroke due a lesion in her brain. Radiation treatments for the lesion caused her to have permanent paralysis of her right side. Doctors said that she wouldn’t live past 30. At the age of 25 Michelle surfered a second stroke and was in a coma for eight days. At that time doctors operated removing the lesion from her brain. After physical therapy she was able to speak and walk again. Wulfsteig is now 36 is a motivational speaker and executive director at Southern California Hospice Foundation.
(Photo by Leonard Ortiz, Orange County Register/SCNG)
Michelle Wulfestieg, in Newport Beach on Wednesday, Mar. 14, 2018, was 11-years-old when she had her first stroke due a lesion in her brain. Radiation treatments for the lesion caused her to have permanent paralysis of her right side. Doctors said that she wouldn’t live past 30. At the age of 25 Michelle surfered a second stroke and was in a coma for eight days. At that time doctors operated removing the lesion from her brain. After physical therapy she was able to speak and walk again. Wulfsteig is now 36 is a motivational speaker and executive director at Southern California Hospice Foundation. (Photo by Leonard Ortiz, Orange County Register/SCNG)
Brandi Neal
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Michelle Wulfestieg, 37, knows a thing or two about second chances. At age 11, she suffered a stroke and was diagnosed with an inoperable brain lesion.

By the time she was 14, doctors told her she was unlikely to live to see her 30th birthday.

“So at that moment I was really faced with a choice to either feel sorry for myself or to make each day count,” Wulfestieg says. “I chose the latter. I excelled in school. I played volleyball for all four years of high school with half of my body paralyzed.”

Determined to make the most of her limited time, she traveled the world, from China’s Great Wall to the Taj Mahal and an African safari. She also worked with children orphaned by AIDS and volunteered at a rape crisis center.

“I was really searching for my purpose because I knew I was here for a reason.”

Then, while completing her master’s degree in pursuit of a career in hospice, Wulfestieg had a second stroke at age 25. The Bayview Heights resident describes a near-death experience where she was surrounded by light and love.

Though doctors performed surgery and, due to advances in medicine, were able to remove the brain lesion, she was not expected to survive. Despite being aware of everything that was happening around her, she did not have the strength to move her body.

Donate Life America was standing by to harvest Wulfestieg’s organs when, at the urging of her husband, she summoned all her strength and opened her eyes. Upon returning home to recover, she faced a new challenge.

“I underwent intense speech, occupational and physical therapy to learn how to walk, talk, eat – I was like a toddler all over again,” says Wulfestieg, who now has a normal life expectancy.

Seven months later she was back at work and is now the director of the Southern California Hospice Foundation, fulfilling her desire for both passion and purpose. She also penned the book “All We Have Is Today: A Story of Discovering Purpose” about her experiences. Find it here: http://allwehaveistoday.com

Michelle Wulfestieg penned the book “All We Have Is Today: A Story of Discovering Purpose” about her near-death experiences. (Photo by Leonard Ortiz, Orange County Register/SCNG)

What almost dying taught me about living: When I was recovering, people would come and talk to me, sit with me, give me a little lotion massage. I had this epiphany: Oh, my God, this is what my hospice patients must feel like – weak, wounded, vulnerable. And I thought, wow, the gift of presence is so profound, especially when you’re so sick and unable to communicate.

Why I wrote a book: I knew I had a story to tell; I felt like a true miracle. People need to know about this; people need to have hope in their lives. And I feel like even at the end of life there is still an opportunity for hope for dignity, comfort and quality of life.

Another career I would like to attempt: Motivational speaker. I love to share my story, inspire people and give them hope, encouragement and motivation.

How my pets help me: My dog, Bear, actually came to visit me in the hospital and brought me tremendous comfort. Animals don’t judge. They just love you no matter what. I think pet therapy is such an important part of healing. With hospice, we try to encourage pet therapy volunteers to come and visit our patients. They love it.

My perfect day: Any day where I can look back and feel like I’ve accomplished everything on my to-do list, and I was able to meet some of my goals. I feel like that’s a great day.

Favorite word: Productivity.

Least-favorite word: No.

Best getaway: Hawaii. I know it sounds cliché, but we love to take our 6-year-old daughter; we usually go once a year and it’s magical. We like to sit there, drink mai tais, look at the sunset and completely relax. We also love to go camping in our Airstream.

My sanctuary: I love getting a facial or a massage. I also love mornings. It’s my quiet time before my daughter wakes up, and my husband’s already gone to work. I can sit with my cup of coffee and read or do a devotional and just have my space. I also meditate and journal every morning. It’s a way to open the mind and soul and let go of some things.

Favorite activity: I love fishing in Newport Harbor. I love just the quietness of it, being on the water, and sitting with another person to talk about life.

Current obsession: Hospice is my purpose. What I’m really focused on right now is opening Heavenly Homes, an end-of-life-care home for the dying.

Red or white: I don’t really have a preference, but I do know I like good wine. In my wine cellar, I probably have a whole case of Silver Oak.

Coffee or tea: Coffee for sure. I love Starbucks – drink it every morning.

Angels or Dodgers? Definitely Angels. I’ve worked with them on several occasions to fulfill my patient wishes. They’re wonderful.

My motto: Make each moment count.

I most admire: My mom, because she’s incredibly strong. My sister has multiple sclerosis, and I have my disability, so she’s been through a lot. She’s a very strong woman with a positive attitude, and she’s always there for us.

Pet peeve: When people who aren’t (disabled) park in handicapped parking. I am very vocal about it. I will go up to them and ask them where their placard is, and tell them they need to move.

What surprises people about me: I am very persistent. If I have a vision to make something happen, I will pursue that vision until it’s accomplished. It took me four and a half years to write my book. I typed it with one hand. I probably sent 200-300 queries (to find an agent) and got rejection letter after rejection letter. But I wouldn’t give up because I knew this is a story that needed to be told.

Parting thoughts: I want people to know that they can do anything they put their minds to. No mountain is too high to climb.

Michelle Wulfestieg penned the book “All We Have Is Today: A Story of Discovering Purpose” about her near-death experiences. (Photo by Leonard Ortiz, Orange County Register/SCNG)